Balance .... despite the Chaos
  • Welcome!
  • About
  • Blog
  • Notable
    • Nature and Photos >
      • Icebergs
      • Serenity....
      • Scenery
      • Sunrises
      • Wildlife
    • Popular Blog Posts
  • My Journey
    • Chronic Fatigue Syndrome
    • Fibromyalgia
    • My Continuing Journey

ME Research in Canada (and lack of funding)

9/2/2018

0 Comments

 
The amount of funding for ME research in Canada is now zero. 

This is down from last year's whopping .11 per patient.  Other chronic illness are funded (eg. Parkinson's funding is $428.16 per patient) so why is ME funding non-existent?  It's difficult to understand why our government continues to ignore us, given even the basic facts:

  • ME is extremely debilitating
  • There are 580,000 Canadians living with ME 
  • ​More people are living with ME than there are living with Multiple Sclerosis, Alzheimer's, Parkinson's, Epilepsy and AIDS combined. 
  • ME isn't going to magically disappear.  Numbers are continuing to grow.
  • More info here 

It's not for  lack of trying.  Many within the ME community have tried extensively to raise this concern and awareness with our elected government officials with no success. 

Shameful.  

I have personally tried to arrange meetings with my MP and other than her standard auto-reply, I have heard nothing back.  I think these folks forget they were elected to represent their constituents -- all their constituents, not just the ones they feel are worthy.  

We have money to hand out for just about every other cause, but no help available for the folks who helped fund those very causes.  

This is totally unacceptable and our Canadian government needs to do better.

That said, I recently had the opportunity to take part in a Canadian University research study about ME.  It was conducted out of Laurentian University details here  and funded out of the pocket of these Scientists.  

Realizing ME patients are quite often too ill to leave their homes, these scientists, Andrew and Max, came to our homes to conduct the testing.  How cool is that?  They were wonderful guys all the way around.  They were knowledgeable about ME (this alone was refreshing! I didn't have to convince them ME was real or even educate them on it.  They knew! This hardly ever happens!).  They explained the testing process well, walked me through the requirements and were concerned throughout the testing time for my well-being.  After the testing was complete, they showed me my scans and explained what they saw.

A big thank you to Andrew, Max and Laurentian University!  Looking forward to following your research into this area!

Canadian Government -- please take note!


Picture
Andrew and Max preparing patient and setting up for testing in ME research study

    

                              Balance ...... despite the chaos! 
0 Comments

    Archives

    September 2018
    March 2018
    February 2018
    October 2017
    July 2017
    June 2017
    April 2017
    March 2017
    February 2017
    January 2017
    August 2016
    June 2016
    May 2016
    March 2016
    February 2016
    January 2016

    Categories

    All
    30 Things Meme
    Aspartame
    Award
    Back On Track
    Boundaries
    Canadian ME Research
    Change
    Chiropractor
    Costochondritis
    Exercise Intolerance
    Expectations
    Fibromyalgia
    Frustration
    Healing Journey
    Health
    Homeschooling With Chronic Illness
    If Only
    Inspiration
    ME/CFS
    Mental Illness
    ME Research
    Moving Forward
    My Story
    Nutrition
    Organization
    Photographs
    Positives
    Positivity Makes It All Ok
    Reality Check
    Reflection
    Relaxation
    Slow Down
    Thankful
    Trim Healthy Mama
    Update
    Vaccines
    Weight Gain With Chronic Illness

    RSS Feed

Powered by Create your own unique website with customizable templates.